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A Walk with Sara and Grace

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Thursday, March 27, 2008
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March 2008
Saturday, March 29, 2008
8:15:00 AM CDT

A Good Day?

Friday was a good day.  Thursday they did a colonoscopy on Sara with NO anesthesia or pain meds.  They couldn't get a vein to put in any drugs.  After that, I think Friday was a shoe-in.

They were able to get a central line in. That was the best news yet!!!  That means that when she needs some fluids or nutrition it won't require a hospital stay.  It's kinda' ironic that when she's in the hospital, only an RN can touch those lines (the LPNs can't hook up fluids or jab some drugs in the line) but when she's home, we use them all the time.  Sara & Ron take better care of that central line than any of the nurses do.  It's imperative to keep it clean because it's an open wound straight into the blood.  They kept her last one clean for a year (before the fiasco on one of the previous trips to Miami). 

Sara still has the hoof & mouth disease.  (Sorry if I'm repeating myself, but I don't typically re-read the previous entries)  They haven't gotten the test results back from earlier in the week checking for graft-host rejection, nor from the biopsies from the non-anesthetic colonoscopy.  It doesn't seem that graft-host is as easy to diagnose as host-graft (typical) rejection.

Ron said she's put on a fair amount of water weight.  I'm not sure if that's a good thing, but it does give a sense of "normalcy" to this hospital stay.  She usually gains about 40 - 80# of fluids when she's in there.  It is extremely uncomfortable for her.  It always comes off, but because it happens so regularly, maybe it's a sign that things are getting better for her - back to "abnormal" before normal sets in. 

Sara's feeling better.  She's been able to hold down most of her food.  They'll probably hook her up to some TPN for a couple of days to ensure her nutrition.  They want her to drink ensure to help with her nutrition during normal life.

With the central line getting in, Ron sounded a zillion times better.   Which, of course, makes me feel better, too.  Welcome to the circle of life in the Ultz world.


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