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Subject: John's being discharged today
Time: 8:30:00 AM EST
Author: fisherkristina
Good morning. Just a quick entry before I am off to the hospital. Today is actually discharge day! They are releasing John because his fever is gone. He can't walk much yet. But yesterday he walked a little bit down the hall, actually one lap around the little circle.
I'm so glad his fever is gone and he is able to come home, but I'm a little nervous. Just yesterday I wanted him recultured, because the night before he couldn't walk even one step in the hall, and I was wondering why he was so ill. But it does look like he is improving now.
I am, however, really scared that his hemoglobin is so low, and his numbers are steadily falling. When I pointed out to his doctor/ oncologist the low number in his labs, he ordered blood for John. That was at my urging though. It really scares me that the doctor didn't notice on his own. Actually, the first time I pointed it out to him (day before last), he said he would order blood and he never did. Yesterday I called Dr. Claxton's nurse, Mitzi, in Hershey. I told her the situation. She said that instead of John coming to Hershey Medical Center, that the local oncologist should order the blood for John right away. I had to argue with the local nurse a little bit, but she finally took care of having the doctor order the blood. Such nonsense. She knows it takes three days for the blood to get to the hospital because John's type is so rare. She kept saying, but what if it so happens that he just DOESN'T need it? I said, but what if he DOES?
The blood will take three days to come in. John will get it here at the local hospital he has been in. They will readmit him to the hospital for one day to give him the blood.
Seems kind of strange to me that they are not keeping him since his count is so low, but whatever. I will keep him on my couch in the living room, LOL. Sounds good to me. I can keep a good eye on him. I will make him homemade soup. When he feels stronger (and that may not happen before he gets blood) he can practice little walks around the apartment.
I am so excited! To have him back. Praise God he is with me this year, in time for Christmas. It will be a good one! I am thinking of putting up a tree now! And I will get my kitty back even!
Hope your week is going as well. Now off to the hospital to get John!
Love, Krissy
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Good to hear, Krissy! And good for you for knowing what is going on, and not being afraid to speak up about it. The best thing we can do for our own health or for our loved ones' health is to ask questions and be informed. Doctors are not infallible, and a good doctor will never intimidate you or get angry with you for asking questions.
Take care,
Beth
http://journals.aol.com/luvrte66/nutwoodjunction/ -
Hi Krissy - Glad John's coming home. When I worked in the hospitals while in the army, I noticed that the squeaky wheel got the oil. Personally, when I was in the hopspital. I read my own charts and made my own diagnosis. You know yourself and your loved ones better than anyone does. The doctor has 143 patients and he has to read each chart so that he can remember the last thing he did to or for them.
Jimmy -
I'm glad John feels better. WElCOME home!
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Welcome home John? Does he still have a journal? I will write him there if he does. Oh Krissy, they are so DUMB in hospitals, you have to be "one up" on them. They send people home way to soon. That makes NO sense to send John home when it's likely he will need blood. I know you want him home and welcome him on your couch, but Krissy, it ticks me off because anymore YOU have to the NURSE....the nurses often do NOT do thier jobs. They don't watch theimportants stuff. I know this from Dave's knee replacement surgery. The thought I was really odd, but I don't care! If I see something wrong I tell them!! Right now I am fighting with one of Dave's doctors about a new medication that was added by one of the heart doctors...but not Dave's regular one, but the one who did his angiogram. No one so far will take him off it. I think it's making him pee too much. Then he can't get back to sleep because the pain in his knee hurts!! My book and the internet say this is a symptom, but when I tell the GP this, or the ortho this, or ANYONE, they just sluff me off. The heart doctors said maybe he needs a Urologist. Today we went to the family doctor who did a culture and said Dave has no urninary infection. And his blood shows so infection of any kind. This doctor also told me he had just checked Dave's prostate Oct 29 and it was NORMAL. So WHY would he need a urologist?? He finally said, to Dave & I, wait on this, it could be from the surgery (NOV 5) Don''t worry for NOW. Oh, Krissy, I can only imagine what you must have to deal with. Sorry I went on a bit here! Love to to John, and to you, Krissy, my dear smart friend! Take care, soon as I have a few minutes free from Dave and my other stuff, I am going to call you for sure. We need to talk. I miss you! Merry
12/1/07 11:57 PM
Lori
http://journals.aol.com/helms