Archives
Subject: John hasn't been doing this well since before the transplant
Time: 2:08:00 AM EST
Author: fisherkristina
I realize I have needed to write an entry for awhile. I have been getting emails asking how John is doing. I keep meaning to write but I have been soooo tired.
This can be demonstrated by my speech a little while ago. I was just lying on the couch and woke up suddenly and said to John, "My muscles in my leg are panting." What I meant to say was that my muscles were pulsating. I have had very painful fibromyalgia lately.
As I woke more fully, I asked John if he would help me write a blog entry, but told him never mind, because I thought he was "too hired." I meant too tired, LOL. Finally I pulled it together and here we are.
First let me say that I believe John is doing better than he has been since before the transplant. These are his words. He is sitting here beside me. I agree with him. Yes you heard us correctly! We want you to celebrate along with us, because you have been there with us from the beginning! Yes, unfortunately he still has kidney damage but other than that, he is doing tremendously well! We thank the Lord and his doctors for his recovery, and we also thank you all for being there for him.
We know he is doing better because of his lab results. His counts and levels are almost all in the normal range! His platelets are still low. But he no longer has the Hemolytic Anemia and hasn't for awhile. His Hemoglobin and Hematocrit are in the normal range, and are very high for him! John's immune system is now working well! All of this is incredible.
And here's another good surprise. Remember recently when John had 25 to 30% kidney function? Well for at least three weeks he has had a Creatinin level of 1.8 to 2.0. This means he now has 40% kidney function! His kidney specialist said it just would NOT happen in his lifetime. Showed him, huh! John is going to try to improve it even more, if possible.
We are so thankful for how John is doing. I have to be honest though. Sometimes it is hard and we get a little concerned. It is always possible for a bone marrow transplant recipient to have a setback. Look what happened about a month ago. On the other hand, there's no reason to believe John is going to have problems either. We are just grateful he is where he is today. More than grateful. We're pretty ecstatic.
Thank you all for being here for us,
Krissy :)
Edit: I am neglecting to mention the most important thing here. I wrote this entry, and was thinking about it afterward. I am dumbstruck that I neglected to mention this, and don't want to just take it for granted. I have new readers and they may not know. John is in remission from two cancers! In the past ten years John has had both Non Hodgkin's Lymphoma and Bone Marrow Cancer (MDS) leading into AML (leukemia). The bone marrow transplant (stem cell transplant) has put the MDS in remission and should also keep the NHL cancer from coming back.
I want to give the glory to the Lord for this. I also know this has something to do with my husband, who is a fighter.
You can check out his journal here: too stubborn to die
Written by fisherkristina Blog about this entry |
Add to del.icio.us | 
digg this
-
I am extremely happy for John and you! As well as glad that John has so many improvement signs. What a great way to start off 2008! mark
-
Hi Krissy and John, After all John has been through "IT IS ABOUT TIME". I AM SO EXCITED AND HAPPY FOR YOU BOTH. Krissy you were there for him the whole time and you went through hell yourself. You just lay there and rest and let your legs pant.....heehee pulsate I mean. My prayers stay with you always,
My husband has fibromyalgia and the pain sometimes is terrible. He takes neurontin and that helps. Bye for now........Love Myke -
Good for him! Keep kicking ass!
-
1/17/08 10:19 PM
This is Jamie...you stopped by my blog and commented today. Tell AJ that I've been trying to email her but her email keeps rejecting me and not accepting my emails.
Thank you for your encouraging words. It means a lot to me to know people who have been through or are going through what I am. This road is a difficult one and I often have a hard time expressing how I truly feel about it. I trust the Lord's plan completely, but I can't help but get into my flesh sometimes and allow myself to feel the fear of losing my husband. And then when I need to talk to someone, because no one I know is going through the same thing, they don't know what to say to me when I share with them so they tend not to be reluctant to take part in a conversation.
This disease is brutal. It kills me to watch my husband struggle. I know you understand. It tears my heart up. But the Lord is always faithful to pull me out of whatever pity party I might be throwing myself.
I pray that your John will continue to be in remission and he never have to undergo any other treatments ever again.
God bless you.
Jamie
http://journals.aol.com/ldybu