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10:00:00 AM EDT
Feeling Cheerful
Hearing really quiet and peace
Good Morning one and aLL
Tears of Joy. The ring on Connies hand, Alan made for her.
I overslept if I had any place special to be but since I don't really have a specific time and place to be, I am right on time, in my estimation. Course Joe would say I am not right, any way. I really should not say that. I know he thinks it but since I chewed him out for being so negative he has been pretty good. Jack, that man will not smile and the rare ones I get with the camera he is always looking goofy in some other way. He hates getting his pic taken. I never have to worry about it but once in a while cause I am on the other side of the camera, most of the time. I have debated about putting a pic up, but I am going to post it today, I think. I never sent it to Terry Ann cause it is not the best face of MS or my son in the later stage of his life. However it got much worse. But since I am leading up to showing the best on his birthday the 18th I am going to show you one of the most emotional birthdays he ever had. It was next to the last birthday he ever had. We still had his apartment Ron was able to eke out enough money to pay the rent on it till we got a caregiver for him to live in at his own Apt. His friends wanted to throw him a birthday party to try to cheer him up so one of them worked at Kinkos and got a bunch of balloons that had Kinko on it. Joe and I went to the nursing home and picked him up, and it was so hot that day the air in our car just barely cooled. One thing a person with MS can not take is heat. I gave him the line that I was going to take him to the apt. and fix dinner for him that was not nursing home food. I had bought him the outfit he had on for his birthday. It was not his style at all but it could be put on fairly well but I could tell he didn't really care for it. By the time we got to the apt. I think we all wished we had put on even cooler clothes. I was wheeling him in the wheelchair and he was truly suprised when I opened the door and wheeled him in and everyone yelled "suprise" and many of his friends and a lot of his family was there. For nearly 3 years prior he had to prop his head on his hand on the arm of the chair because he had a hard time holding his head up even for short periods of time. I could do nothing about the shaggy hair or his untrimmed beard. He was so very emotional and grateful and even through his tears happy, to be in his apt. We were looking for a care giver so he could live his last days at home, and I think that day he truly believed that . He despised the nursing home and I could not blame him. If he had been about 40 years older maybe he could have accepted it better. In the picture with him is his sister Connie. This is the next to last picture I will ever post showing the deeply emotional side of his life. Oh yes, I did want to add that Kelly asked what RSD was and also Ketamine so on her Journal which is named Pride and Prejiduce, I answered her in her comment section yesterday and that was the name of the disease Chips wife had and the med they gave her which is mostly used by Veterinarians. For the disease she had it took desperate measures. Enough of that. We think Chip is back from wherever they went over the 4th. There were lights in one window in his house across the alley and Joe thought he heard some noise comming from Tony's so it could get pretty lively. One reason I am posting Alan's picture is to show everyone, that damn disease is not discriminatory. It is a nasty disease but fortunately not everyone goes the whole time without remissions. I am sorry my Journal is such a downer today but let me tell you a god part. After everyone left but Joe and I and him, for the first time in a long while he was rolling around his apt. breaking the balloons with his wheelchair with a smile on his face, and a thank you, mom and Joe. That meant so much. I will never ever show the picture of his last Birthday. This is the last except for happy pics. I miss him, and always will. He went on hospice when we got a care giver. We could have never done it alone. Shirl knows how valuble hospice can be. Some really think it is the wrong way to go but if not for them he could never have been in his home to die.
It is going to be 95 today so I think typical July weather is here to stay for a while. Jack I have your little naked, (Ithink) man and scoop in storage for the next big snow. I will need his help. Ron stopped by and his dog Frank has allergies also and his little country vet gives their dog allergy shots. She fills the vial and Ron stops and gets it and shoots Frank up himself. I thnk if Spunky back slides on us now that we will be cutting his prednisone down to one a day starting today, we will call Ron's vet. Ron is an EMT, yet until his hearing deteriorates more and they had to get a 35 year old man out of the bathroom. He has several health problems but he went in the bathroom and passed out with his back against the door so no one could get in. The man was in a sitting position against the door unconscious and his head had fallen forward and was cutting off his air way. They were trying to get the door off the hinges but Ron said he finally squeezed through and when Ron pulled him away from the door he became more alert but very combative cause he still was not really out of whatever spell he had. I could never be a nurse or EMT. No way, No how. I am hearing signs of coffee being made so I think it is my turn to restore my depleted energy.
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hey Lucy, sorry so late getting here. i let the young folk have the computer to day.
Nice entry. cant imagine what that must be like . makes me ashamed for complaing of my little problems. God bless you dear. june -
Awww Lucy it would be so hard to watch one of your children go through what you did with Alan. You have lost quite a lot of people in your life. My mom and her oldest brother were the last one's a live out of 4 brothers and 3 step brothers. My uncle is the last one. I thought he was going to pass out the day of my mom's funeral. He can not hardly walk now. Keeping you in my prayers. Hugs, Janie
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that was a sweet picture of Connie and Alan!! I think you should share whatever you want in your journal, Lucille, about Alan especially since I know you are honoring him this month with it being his birthday month; that was a cute story about the surprise party; I'm glad friends decided to do that for him; I'm sure he enjoyed it so very much, especially the fact that people cared/loved him so much!
betty -
What a good picture happiness shown on the faces. You are right Lucy Hospice is
wonderful. They are there when you need them they are a God Send.
The workers are so dedicated and know their job. When you are unable to
get your loved one to the Dr. they are there with the knowledge. They are
there to the very end.
7/18/08 5:24 PM
Hospice is wonderful....they came in towards the end with Judy....and was really a big help to the family.
Hugs
Terri