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too stubborn to die

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Saturday, January 19, 2008
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it's the 2nd anniversary of my bone marrow transplant
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« January 2008 Archive
Thursday, January 24, 2008
9:27:00 PM EST

it's the 2nd anniversary of my bone marrow transplant

This Sunday is a special day.  It's a second anniversary for me.  On January 27, 2006, I had a bone marrow transplant, which put my bone marrow cancer into remission and prevented me from developing leukemia.  This transplant also made sure that my Non-Hodgkin's Lymphoma, which had been in remission since 1999, would remain in remission indefinitely.  The transplant did what it was supposed to do, but it left me with nearly constant complications for almost a year, and frequent complications for a year after that.
 
But during the last six weeks, my weekly lab tests have shown a big improvement in some major areas of my health.  My immunities have been in the normal range for a month and a half.  This is a great relief after having very low immunities for most of the last year.  The three most important measurements of my red blood cells also have been normal for the first time in three years.  And my kidneys have improved from 30 percent function to 40 percent.  While my doctors are all pleased with these changes, I'm thrilled.  Maybe now I can have a life that's closer to normal.  I'm looking forward to that.
 
My home town nephrologist (kidney doctor) was surprised as well as pleased by the improvement in my kidneys.  He's told me several times that damaged kidneys don't repair themselves.  But that's what my kidneys appear to have done, at least partially.  He isn't sure how this can be.
 
This has happened to me several times.  In the summer of 2006, I had total kidney failure.  The nephrology team at Hershey Medical Center started me on dialysis the next day, but they told my wife Krissy to prepare herself, because they thought I would die.  Obviously, I didn't die; a week later they told Krissy that I would live, but that I would be on dialysis for the rest of my life.  A week after that, my kidneys were working well enough that they took me off of dialysis.
 
When I got home, my local nephrologist told me that my kidneys were functioning at 25 to 30 percent.  When I asked him if my kidneys might improve more, he said that he doubted it very much.  Now, a year and a half later, my kidneys are functioning at 40 percent.  This time when I asked him if my kidneys might continue to improve, he said, "I doubt it -- but never say never."  Apparently he isn't completely ruling out further improvement. 
 
I like surprising doctors when it's in a good way.  I've set a goal for myself:  I want to reach 50 percent kidney function.  Maybe it's not realistic, but I'm determined just the same.  I know that I owe a lot of my success to the prayers and support of you and the readers of my wife's blog, Sometimes I Think.  I believe that the Lord has kept me alive for a purpose that He has in mind.  God willing, I'll achieve my goal.


Written by johneknox Blog about this entry
This entry has 56 comments: (Add your own)
  • #56 Comment from sassydee50 
    1/31/08 2:48 PM Permalink
    Happy Birthday John! You sure are a fighter and I wouldn't be at all surprised if you achieved your goal. Wonderful news about your health; I'm so happy for you. ;-)
    Deb
  • #55 Comment from lsfp1960 
    1/29/08 12:33 AM Permalink
    Happy Birthday John, I know God has good things in store for you (and Krissy) in the coming years.  Linda in Washington state http://journals.aol.com/lsfp1960/LindasWorld/
  • #54 Comment from bojgill4375 
    1/27/08 11:13 PM Permalink
    Happy Birthday John. Well we know how your kidneys are healing them selves, don't we? lol God is good. I am sure that God has a reason. Will keep you in my prayers. God Bless, Janie
  • #53 Comment from irisheyes1929 
    1/26/08 11:36 PM Permalink
    I've been amazed by your courage and faith as I've read about and prayed for you and Krissy.  Congrats on the anniversary!!  
    Keep close to Jesus,
    Kellen
  • #52 Comment from mtrib2 
    1/26/08 7:08 PM Permalink
    That is the best news that you could possibly have gotten about all the improvements, and finally things are going toward normal.   I know what a struggle it has been for you and Krissy.  Many more 'Happy Birthday's' to come John!   mark
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