4:45:28 PM EST
Update
Hello friends. I am so sorry. I should have done this sooner but as some of you know, I have to have neck surgery soon so I am taking a break from As I Am.
I have opened this journal up for everyone. AOL users that is. You can write an entry just like it was your own journal. You can add links to the right there and tell about yourself and offer support for others, or ask for help yourself.
Please do NOT give out personal information here!!!!!
You can give your email address and your journal link. For your safety, I will monitor this journal. If I see anyone giving out a phone number, mailing address, or other personal information, I will remove it. Remember, everyone in the world can see this! Your safety comes first.
So, this is YOUR journal. Help others, ask for help. Tell others about this journal. No one should feel alone. Thanks.
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memes121
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9:42:59 AM EDT
Thanks friend and welcome!
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memes121
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1:33:27 PM EDT
Another Friend Needs Us
I have degenerative disc disease in the lumbar region(lower back)...I have osteoarthritis in both on my knees...I have to walk with a cane because of the back pain mostly. I also have mental illness...depression...ADD...PTSD....and Borderline Personality Disorder which is the most disruptive in my day to day life. I live on Social Security Disability...I qualified for Medicare but the don't cover all of the meds I need. And yet they say I make to much money to qualify for Medicaid. If nothing else I would like to meet new friends who can share their stories and maybe their accomplishments with me. I see a therapist and a psychiatrist...they I have to pay 20% on each visit because again Medicare won't cover all of it...and I'm way behind on my payments to the hospital. I don't even have cable tv because I can't afford it...so I'm left here in my small apartment with nothing to bring me any temporary joy of any kind. Please feel free to give out my journal link. I only posted one entry so far....Thanks...June:)
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3:00:46 PM EDT
Please Help
This wonderful person just emailed me. I didn't get her name and hope to but I didn't want to wait on this. They need to know that they are NOT alone! We are all here and we all "get it!"
Please email them. This is what this journal is all about. Let's get to work. Thanks.
You website is very informative. I am so glad to visit it today. It's really hard not feeling so alone in medical world. I just wish there were some days which I would never ever have to see them again, I suffer from so many conditions no one really wants to treat them, or they say "I have been through too much" and assume its just a mental or endurance problem. I don't want to give up hope that there will be an answer someday, but its really hard day to day. These are the illnesses I have up to date: (only age 24)
1.Dilated Cardiomyopathy age18
2. Congestive Heart Failure age 19
3.Car Accident age 22
a. Complex Regional Pain Syndrome- left leg/foot
b. Pinched Nerve-left foot
c. Arthritis of the Neck and Knee
d. Degenerative Disc Disease/ Disc Buldges
4. Trigeminal Neuralgia
5. Peripheral Neuropathy
6. Pernious Anemia & Other Malnutrition Problems associated with gastric bypass.
I really don't feel like anyone can help me anymore. Every doctor I go to feels "overwhelmed" and passes me along to the next, and then I go through Post Traumatic Stress from the medical community, I really really need a prayer and some encouragement. It's getting close to the point where I just pull the plug on everything, and leave everyone alone. I hate being judged, I really do.
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memes121
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10:32:29 AM EDT
Lippy
I had 5 small Subarachnoid hemorrhages back in 1987 and 1988, those caused several other brain problems including the following. Seizures, short term memory loss, loss of concentration and thought process. Gait and balance problems as well as Adult Hydrocephalus, that did not respond well shunt treatment.
I had a 3 level laminectomy, with a 4 level posterior lumbar spinal fusion, done in June of 2000. The surgery was done to correct Degenerative Disc Disease(DDD), Spinal Stenosis, Degenerative Scoliosis, and 7 bone spurs. I had surgery at a point when I was facing a wheelchair and the surgery was very successful. However I still have DDD and spinal arthritis, as well as arthritis in many other areas. Live isn't always fun, but I normally get by fairly well, with the help of medications. I can be found daily on the AOL Back Pain Boards, or by email at herlippy1@aol.com I'm always willing to help others by doing research, or chatting. You'll find my spine journals full of information on spinal problems of all sorts. I have even more in my files. The first link is in the Favorite Journal section.
Spine Links Galore
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