Friends Helping Friends

A Reminder

Mon, 28 Jan 2008 17:31:19 GMT

Please remember that if you write an entry here, the comment alerts comes to me. So check back to see if people commented to your entry. Thanks!

HI ALL

Mon, 28 Jan 2008 16:07:32 GMT

HI TO ALL! SORRY I HAVEN'T CHECKED IN A WHILE BUT I AM GETTING EXTREMELY PREGNANT AND MISERABLE NOW! I AM 6 MONTHS NOW AND HAVING A LOT OF PROBS AND PAIN SO I DON'T SIT @ MY COMPUTER MUCH. THE FIBOR IS NOT HANDLING THIS PREGNANCY VERY WELL!
WELL TALK TO YOU ALL SOON I HOPE TAKE CARE ALL
TRACY

Update

Thu, 17 Jan 2008 21:45:28 GMT

Hello friends. I am so sorry. I should have done this sooner but as some of you know, I have to have neck surgery soon so I am taking a break from As I Am.

I have opened this journal up for everyone. AOL users that is. You can write an entry just like it was your own journal. You can add links to the right there and tell about yourself and offer support for others, or ask for help yourself.

Please do NOT give out personal information here!!!!!

You can give your email address and your journal link. For your safety, I will monitor this journal. If I see anyone giving out a phone number, mailing address, or other personal information, I will remove it. Remember, everyone in the world can see this! Your safety comes first.

So, this is YOUR journal. Help others, ask for help. Tell others about this journal. No one should feel alone. Thanks.

Thanks friend and welcome!

Wed, 17 Oct 2007 13:42:59 GMT

Comment left for Fibromylagia

I know the feeling! After years and years of being looked at like I'm nuts, and people, who by the way were suppose to be my friends, have left me. I have thought long and hard about this, and I now use this to explain our problem to people.
Fibro, and suger diabetics has a lot in common. Neither of us look ill. There is no signs that say we have Fibro, as there is with cancer. However, there is no signs that you are a diabetic either. Yet, people realize that they have a disease that can be fine one day, and out of control the next. Just like Fibro.
One day you feel like you could swim the ocean. The next day you crawl to the bathroom. It is not in your head, the pain is real, and anyone who doesn't stick by you, isn't the friend you thought they were.
I have read much on this thing that has come to mess up our lives, and I found the first thing to do is find a good doctor. You can find one under Pain Management in the phone book.
If I can be of any help, give me a shout. SewingKatrinka@aol.com
Kassie

Tags: Fibromylagia, Pain Management, Friends Helping Friends

Another Friend Needs Us

Tue, 18 Sep 2007 17:33:27 GMT

I have degenerative disc disease in the lumbar region(lower back)...I have osteoarthritis in both on my knees...I have to walk with a cane because of the back pain mostly. I also have mental illness...depression...ADD...PTSD....and Borderline Personality Disorder which is the most disruptive in my day to day life. I live on Social Security Disability...I qualified for Medicare but the don't cover all of the meds I need. And yet they say I make to much money to qualify for Medicaid. If nothing else I would like to meet new friends who can share their stories and maybe their accomplishments with me. I see a therapist and a psychiatrist...they I have to pay 20% on each visit because again Medicare won't cover all of it...and I'm way behind on my payments to the hospital. I don't even have cable tv because I can't afford it...so I'm left here in my small apartment with nothing to bring me any temporary joy of any kind. Please feel free to give out my journal link. I only posted one entry so far....Thanks...June:)

JVButterfly@aol.com

June's Journey

Tammy (Me)

Wed, 09 May 2007 21:09:48 GMT

Three ruptured disks in lower back.

Two surgeries, last one a spinal fusion. Means I have hardware in me.

Advanced Degenerative disease since I was a teen.

Sacroiliac Joint disorder

Severe nerve damage, mostly on right side.

Restless Leg Syndrome (RLS)

Three bulging disks in neck

Severe arthritis from all of that.

Constant leg pain

Migraines, mostly coming from neck.

Depression

Walk with crutches or use wheelchair...not as much as I am supposed to but I am a tad on the stubborn side.

Constant exhaustion and sleep problems. Not too little, too much. Waking up feeling drugged and exhausted and the doctors don't know why yet.

That is the short version. Will be glad to get into more detail with anyone who wants to talk.

memes121@aol.com

Please put the name of this journal or something to let me know you aren't spam. Thanks friends!

Please Help

Tue, 07 Aug 2007 19:00:46 GMT

This wonderful person just emailed me. I didn't get her name and hope to but I didn't want to wait on this. They need to know that they are NOT alone! We are all here and we all "get it!"

Please email them. This is what this journal is all about. Let's get to work. Thanks.

You website is very informative. I am so glad to visit it today. It's really hard not feeling so alone in medical world. I just wish there were some days which I would never ever have to see them again, I suffer from so many conditions no one really wants to treat them, or they say "I have been through too much" and assume its just a mental or endurance problem. I don't want to give up hope that there will be an answer someday, but its really hard day to day. These are the illnesses I have up to date: (only age 24)

1.Dilated Cardiomyopathy age18

2. Congestive Heart Failure age 19

3.Car Accident age 22

a. Complex Regional Pain Syndrome- left leg/foot

b. Pinched Nerve-left foot

c. Arthritis of the Neck and Knee

d. Degenerative Disc Disease/ Disc Buldges

4. Trigeminal Neuralgia

5. Peripheral Neuropathy

6. Pernious Anemia & Other Malnutrition Problems associated with gastric bypass.

I really don't feel like anyone can help me anymore. Every doctor I go to feels "overwhelmed" and passes me along to the next, and then I go through Post Traumatic Stress from the medical community, I really really need a prayer and some encouragement. It's getting close to the point where I just pull the plug on everything, and leave everyone alone. I hate being judged, I really do.

studentnurse2007@yahoo.com

Update

Sat, 14 Jul 2007 16:49:57 GMT

Krissy has added some more topics to her list. Among them diabetes. I will begin the series of Knowledge is Power in As I Am Monday and the topic will be diabetes. So stay tuned. If you want to be added to the list just let me know!

Krissy

Sat, 05 May 2007 17:45:03 GMT

Kristina

bipolar

obsessive compulsive disorder

fibromyalgia

asthma

narcolepsy

sleep apnea

obesity (didn't want to admit this one, but I am working on getting better!)

Diabetes Type II

hypothyroidism

allergies

I am a Caregiver. Would love to share ideas with you.

If you email me, please put the name of this journal "Friends Helping Friends" in the subject line, so I don't accidentally delete you, thinking you are spam.

fisherkristina@aol.com

More Items

Tue, 19 Jun 2007 15:07:26 GMT

I have added some more subjects in the site favorite section on the right there. Keep checking back for more!