1:20:00 PM EDT
Feeling Frustrated
Hearing Ds12 talking to himself & dog while reading
What's it like to have Unlimited Spoons?
Okay, you all know the "spoons" story. If not, here is the link. Spoons
A quick definition before I continue...
"well" = no chronic illness, ie; lupus, RA, etc.
So, I wonder, what must it be like to be "well" and to never have to worry about spoons - to have a virtually, unlimited supply?
Because here is the thing...I have suffered for the last 2 days just for cleaning our playroom! Now, I know I asked for it. I knew what was going to happen going into the whole thing. Yesterday, I could barely move, slept on and off all day, and when I was awake, I was cranky and sore.
Today is better. Not perfect but better. In the days before Remicade, I would still be sleeping all day and probably would pay for it for a week, so believe me, I am grateful for small favors.
All you people out there who are "well" and read this rant, stop for a second and thank God for how blessed and lucky you are to not be chronically ill and in pain. Every moment of my day is touched by my illness. And I know, you cannot even fathom that. So, again, thank your lucky stars.
That is not to say that I am not blessed. I am. I have 3 marvelous children that I have the honor of raising. I have a hubby who loves me and tries his best to be everything I need. I have 2 healthy parents that I have the privilege of living with in a mother/daughter style house that I see everyday, and help me in innumerable ways. I have 3 pets that give me such joy. I have wonderful friends, and a fabulous online community that truly keep me sane.
I am lucky, I am blessed. I just don't have enough damn Spoons!!!
Peace, love and hugs, Dawn
Written by princesssaurora Blog about this entry