Everything Jerde

7:32:51 PM EST
Feeling Sad
Hearing TV's in this room and the kids' room where they're tearing the house down (I mean playing).
Today, I met with Lee's new Occupational Therapist. Today was just a consultation without Lee, so I went while he was in school. She gave me some really good tips to work with him on his feeding issues as well as how to get him to sleep in his own bed and stay there. Sadly, I don't think Daddy is going to change his ways and help me with this.

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11:51:49 PM EST
Feeling Chillin'
Hearing TV & Sara crying from her crib for me to get her another bottle.

We (Sara and I) got Lee to school, but by the time we got back it was almost 9am. She went down for her morning nap and stayed down until about 1:15. So, since we couldn't do our weekly errands & grocery shopping and be back by 2:30 to meet Lee's bus, we waited for Lee and took him with us. We got home about 5:30. It's a good thing I brought supper with us and didn't plan to cook, God only knows when we would've eaten.

The big news is about yesterday. First, I guess I need to backtrack. On Jan. 7th, we had a 2nd IEP meeting for Lee for this school year. It was to ammend the one done at the beginning of the school year. After school started & after the first IEP, Lee went to his neurologist. He wanted to add 'occupational therapy' to Lee's regimine of treatment. It took us from 9/23/03 until 1/7/04 to get the IEP meeting and make the ammendment. I very upset about this, but the fact remains that that time is now lost. He lost half a school year that he should have been receiving therapy.

Then, I found out during the meeting that the therapy would only concentrate on issues that pertain to his academic development. So, who cares if my 4 year old can't do things like ride a tricycle, open a door, or brush his hair and teeth. I was told to seek help from an independent therapist. Thank God Lee has Medicaid, because our insurance through Daddy's work stinks and just doesn't cover this.

I had to call his neurologist for a list of doctors that provide therapy & accept medicaid. I found the one we needed to see and made arrangements for his primary Dr. to fax the necessary paperwork. I went to follow up on this yesterday, after 3 weeks of waiting, to hear that the new Dr. had no info on Lee. I had to make calls to resolve all of this.

The final good news: we have an appointment for Monday, Feb. 2, for physical therapy. Thank God I followed up on it, or who knows how much more time would have been lost. We go back to his neurologist 7 weeks after this first meeting, so I'm sure we won't have enough sessions in to make a difference and have anything to report to the Dr., but I guess the main issue is that we are finally getting some help in this area.

 

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11:57:41 PM EST
Feeling Sad
Hearing Just the TV

Sara was very cranky Thursday night after going to bed. She'd been "fighting" sleep, and I assumed she just didn't want to go to bed, since Lee was still up. So, I decided to let her cry it out. She fell back asleep, but not long after, she started crying again. I knew by the cry this time that it wasn't going to stop, so I went to check on her. She had thrown up all over her bed. I cleaned her up and put her in our bed to sleep with us. She continued to try to throw up all night long, at least once per hour. She couldn't though and just dry-heaved because her belly was empty.

Friday morning, about 5:30, I had to take back medicine because I was hurting so bad from holding her all nite in the chair. So, Lee ended up missing school because I overslept and couldn't get him there.

I took Sara to the doctor and found that she had a virus that will probably last through the weekend. Well, so far it's proven to be true and it looks like Lee wants in on the action. Unfortunately, it looks like I'm getting it too. I just don't know how I'll manage if I get sick too.

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12:53:27 AM EST
Feeling Frustrated
Hearing TV & Heater/furnace (awful thing is sooo loud!)

I'm sort of seeing red today, so I figure that's a good color to create today's journal in. So much happened today, and yet, it was a completely wasted day. Know what I mean?

I went to the doctor today to find out what's wrong with me. Seems that I'm just falling apart. I'm always concentrating on everybody else (Lee, Sara, Hubbie, and anyone else I can do something for). But, today was my turn, and boy, I tried to make the most of it.

My complaints to the doctor: severe, chronic back pain, extreme fatigue, joint pain, excrutiating knee pain/problems, abdominal pain, feet pain, weight gain. There was more, but I figured I'd take a little at a time. I'll go back later to inquire about the rest.

In a nutshell, she thinks I have an injury to my spine that is untreatable. Also, possible thyroid problems. She took blood (and lots of it-OUCH!!!) and ex-rays. I'll get the results in a couple of days. In the mean time, she gave me 3 scripts of pain med, muscle relaxers, and an anti-inflammatory medication.

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4:44:31 PM EST
Feeling Anxious
Hearing The sounds of 2 TV's and 2 giggling, happy children :)

Hi! And welcome!

This is my first entry and just enough to get started. I've spent a good amount of my day creating Lee's homepage. It will be ready for viewing hopefully in the next couple of days. I have a page already going for Sara for her pictures. I will link this, too, as well as the other pages I have going. Also, I am trying to make links on each and every web page that we have to all the other pages, so if you can't get to a page on one site, please visit another one and try from there.

It's almost time for hubby to be home and I need to get things going for supper, baths, and school and work for tomorrow, so I must hurry. This posting will just be an introduction of ourselves to you, please come back later for more.  

Also, I want to say that I am creating  this journal with the hopes and intentions that it will help me to keep track of all the many issues in our lives, keep me on-track and focused on issues to address, challenge and take care of, and lastly to be able to share our lives with our family and friends. I hope that time and motivation remains with me to continue these postings and updating our pages. And, I truly hope that they are enjoyed by those of you who choose to veiw them. Please provide your feedback about any issue so that I will know how I am doing. And lastly, God Bless You!!!

 

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