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11/5/03
more patients...
Wednesday, November 5, 2003
Subject: more patients...
Time: 8:09:00 PM EST
Author: starlady11
I heard from more people with hemochromatosis today, or at least who thought they had hemochromatosis...some were family members who were worried about their loved ones, they were confused, angry, scared, a combination of many emotions. One woman was from California, another woman was from Arizona. I tried to explain what might be going on, which is sometimes difficult when the callers do not have the exact numerical results for their tests...still, I try to offer some kind of solace and education to these people so that they can end the conversation with some feeling of empowerment. Most people seem to want to know about genetic testing, others want to find a local doctor, but I tell them that that is not necessary, they can confirm, or rule out, hemochromatosis by testing themselves through a lab called, HealthCheckUSA. (www.healthcheckusa.com) most people don't have any idea what to do when faced with a "free floating" opportunity to order their own medical tests. often their comment is, "but i don't know what the medical terms mean". These are intelligent people who are able to do many things in life, but they are intimidated by the medical jargon. But I reassure them and tell them that they can easily learn the jargon, the words that seem so strange now, and they can remove that "mystified" aura attached to medical terms and medical knowledge. The Internet has seen to that.
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Subject: more patients...
Time: 8:09:00 PM EST
Author: starlady11
I heard from more people with hemochromatosis today, or at least who thought they had hemochromatosis...some were family members who were worried about their loved ones, they were confused, angry, scared, a combination of many emotions. One woman was from California, another woman was from Arizona. I tried to explain what might be going on, which is sometimes difficult when the callers do not have the exact numerical results for their tests...still, I try to offer some kind of solace and education to these people so that they can end the conversation with some feeling of empowerment. Most people seem to want to know about genetic testing, others want to find a local doctor, but I tell them that that is not necessary, they can confirm, or rule out, hemochromatosis by testing themselves through a lab called, HealthCheckUSA. (www.healthcheckusa.com) most people don't have any idea what to do when faced with a "free floating" opportunity to order their own medical tests. often their comment is, "but i don't know what the medical terms mean". These are intelligent people who are able to do many things in life, but they are intimidated by the medical jargon. But I reassure them and tell them that they can easily learn the jargon, the words that seem so strange now, and they can remove that "mystified" aura attached to medical terms and medical knowledge. The Internet has seen to that.
Written by starlady11 Blog about this entry |
Add to del.icio.us | digg this
