November 2003
11/15/03
Carrying on family traditions
11/6/03
11/6/03
11/6/03
11/6/03
11/5/03
Saturday, November 15, 2003
Subject: Carrying on family traditions
Time: 10:39:00 PM EST
Author: starlady11
It is hard to carry on family traditions when someone significant to that family group has passed on. It is a bitter sweet situation, causing both pleasure, and pain. But, we have tried to carry on family traditions in our family, and celebrate holidays as we have in the past. We particularly had a good time this year with Halloween. We had many children come by the house to get their candy, and this year we dressed my dad up like I was, as the character from that movie, "Scream". It was really funny, we had a lot of laughs. Even though my father spends a lot of time in a wheelchair, (he's 89 and doesn't walk too well anymore) that didn't stop him from enjoying himself or having a bit of fun "scaring" the neighborhood kids. We turned down the lights to the entrance hall in our house and had a table behind us with spooky candles on it. My father held the jack o'lantern pot of candy and I opened the door and invited the children inside to get their candy, if they dared...then I would ask my father to "scream" for them, and he would let out a loud scream. It was a big hit with everyone. Two young boys were terrified and went screaming and running out the open front door, leaping down the steps outside and down the sidewalk. In a way, I felt bad that they had been scared, but after all, that was what Halloween was all about, right? No doubt, next year, we'll have a reputation for being one of the "scarier" houses on the block. I always try to take photos of our special occasions, it's a nice way to remember the good times that we have had. I'm lucky that my mother's hobby was photography and we have many photos of our family and special holidays and just ordinary days. That, too, is a hobby that will become a tradition for me.
Written by starlady11 Blog about this entry
Subject: Carrying on family traditions
Time: 10:39:00 PM EST
Author: starlady11
It is hard to carry on family traditions when someone significant to that family group has passed on. It is a bitter sweet situation, causing both pleasure, and pain. But, we have tried to carry on family traditions in our family, and celebrate holidays as we have in the past. We particularly had a good time this year with Halloween. We had many children come by the house to get their candy, and this year we dressed my dad up like I was, as the character from that movie, "Scream". It was really funny, we had a lot of laughs. Even though my father spends a lot of time in a wheelchair, (he's 89 and doesn't walk too well anymore) that didn't stop him from enjoying himself or having a bit of fun "scaring" the neighborhood kids. We turned down the lights to the entrance hall in our house and had a table behind us with spooky candles on it. My father held the jack o'lantern pot of candy and I opened the door and invited the children inside to get their candy, if they dared...then I would ask my father to "scream" for them, and he would let out a loud scream. It was a big hit with everyone. Two young boys were terrified and went screaming and running out the open front door, leaping down the steps outside and down the sidewalk. In a way, I felt bad that they had been scared, but after all, that was what Halloween was all about, right? No doubt, next year, we'll have a reputation for being one of the "scarier" houses on the block. I always try to take photos of our special occasions, it's a nice way to remember the good times that we have had. I'm lucky that my mother's hobby was photography and we have many photos of our family and special holidays and just ordinary days. That, too, is a hobby that will become a tradition for me.
Written by starlady11 Blog about this entry
This entry has 4 comments: (Add your own)
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Hi IronAngel, to sum all of this up, this was actually a direct response to your entire site. the people that share the same dilema that i face day in and out. and to address the people that are having a hard time accepting me and or other people out of fear that they will grow attached and then i might pass on. people.. you can choose to live for the moment, the hour or the day...no matter what happens. we all move on from this world sometime. and to share any moment that you can with a person in my shoes, spend it like it may be your last.. can be the most overwhelming feeling in the world. to be afraid for us or what might happen. praise us because we are still here right here, right now.. for all of you to learn from. my name is Gary a.k.a Bosaburn14u
peace to all of you and god be with you : ) thank you angel... for careing so much ! -
i recently met a man who i have become very close to...he is like my angel..always puts a smile in my heart...i love him for that and for who he is..he has come a long way..he has hemochromatosis .. what sadens me is i met him a little too late...he has had a terrible battle with death...and now has developed cirrhosis of the liver..with 13 % left of unscared tissue.. i dont want to loose him..he is such a good person n has a heart of gold..is there any one that can help me n him tell me what his options are ... (gypsy's angel)
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I have just now for the first time stumbled on to your journal entries entitled,"Iron Angel". They are wonderful memories, comments, insights and most of all emotions, expressed by a family member living with this experience. My husband is 45y.o., and was diagnosed with"Hereditary Hemo...", about two years ago. Thank you for sharing your feelings about your Mom and your Dad, they are beautiful!!! Sincerely, Juanita Carpenter, Barnsdall, Okla. ; e-mail:NeeNee2094@aol.com
4/8/04 9:52 PM
you see, IronAngel", i am a 33 year old man with hemochromatosis resulting in cirrhosis . this does not bothe me. there are far many things that i see happening in this world, that are extreemly worse case scenarios. i am blessed with the fact that if i never became aware of this problem, and never became ill to the piont of death, that i would have walked right into the grave, i would have roamed down the wrong path, still drinking heavily, and not taking care of my body. but because i did get sick. those things are a part of my past. i am on a regulated diet that would be considered most peoples dream diet plan. i have to follow up with my wonderful team of doctors monthly, and recieve bloodletting once a week or somtimes as far apart as one month. it all depends on my diet and strength. i feel almost 100 percent as compared to being at the point beyond recovery almost 2 years ago. things are looking more and more on the upside with every passing day. transplant surgeons deem it necessary for me to follow through with a liver transplant, which for the main reason of feeling and doing fine, i have ruled out for the time being. there are many things that i have heard through the grapevine in the past 2 years about treatments and what not. so far, upon aggreement with my primary liver specialist, i am on the best possible regimant that they can think of. i am still very young and vital. how ever.. at any given point or time, i may relapse. the one thing that i know, is that a relapse would mainly be caused if i were to ever drink another "any kind" ounce of alchohal again. in my case, my will is so strong that most people don't believe me . i have an everyday reminder inside of my body now, that i will proceed to be a better and become a better person. i will never go back because i dont want to die. Bosaburn14u