LUANNE'S LIFE LIVING WITH LUPUS

What brings on a Lupus flare?  No one (medical community) really knows what brings a flare on. 

One web site says:

What can trigger lupus?

It is believed that certain things may trigger the onset of lupus or cause lupus to flare, these include- Ultraviolet light, certain prescription drugs & antibiotics, infections or viruses, hormones & stress.

There are a myriad of things that can cause a flare.  I never know what is going to trigger one or when one will occur.

So right now I am hurting.  I am experiencing paralyzing fatigue.  My head is pounding.  My mouth is full of sores.  And my bowels are going crazy. 

I can't take much more of this.  I am going crazy.

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• #9 Comment from charrene 
  3/20/08 3:03 PM | Permalink

  You have my total sympathy.  I've had lupus for 30 years, along with a myriad of other chronic conditions AND a Subarachnoid Brain Hemmorhage from an aneurysm in 1994.  I live in the Greenville/Spartanburg area of SC.  My comment on your entry is just this:  Those new fluorescent light bulbs for home use?  the spiral-y, twisty ones?  It is my understanding that lupus patients should NOT use them, as they can cause lupus symptoms to flare, especially skin symptoms.  Has anyone else heard this, or had any experience with these light bulbs causing problems for lupus patients?  
• #8 Comment from misscolman 
  3/11/08 1:47 PM | Permalink

  Luanne, I wrote to you many years ago.  Lupus was a new diagnosis & my Mom had just passed away.  Well, just when I thought I had a handle on this disease it switched up on me. I have questions.  Where is this Lupus website you've spoken about & is there anyone out there I can talk to about some of the pain I'm having.  I'm sick of doctors - just give me my pain killers, draw my blood, and let me go home.  I need peer support now.  Guess I was too messed up in the head before.  Also, am not online with a lap top yet so sitting at this computer is often painful.  If it's not painful, I'm too darn fatigued to drag myself down here to go online.
  
  Still have my doctors back home (am in Philadelphia now living in my boyfriend's home).  He doesn't really "get it" but takes care of me, makes sure I always have what I need in the house or takes me where I need to go if I'm able to drive or too overwelmed on my own.  Anyway, getting back to doctors - tried to get a new rheumi down here & it was the God most awful experience I've ever had.  
  
  Hang in there.  Speaking of mouth sores this new rheumi I'll never go back to tried to tell me I was misdiagnosed and had Sjogren's Syndrome but didn't have ONE symptom.  Have you ever been tested for this?  
• #7 Comment from eromagnolo 
  12/30/07 11:37 PM | Permalink

  Hi LuAnne.........
  So sorry no how you feel, going threw one since Christmas day. Sleep eat a little sleep, sleep,sleep. Starting to feel better today. I get this every year. Payback time for Christmas. We had all our children & grandchildren for Christmas Eve. 20 people. Cooked cleaned presents tree, = bed, pain. Everone says, can't do it anymore, I must.
  Praying you feel better soon.
  
  Hugs & Happy New Year.
  eileen
• #6 Comment from tish852tlc 
  12/30/07 3:46 PM | Permalink

  I truly know where you are coming from.  The comments that I get from my family and friends about my flares are:  if you wore sunscreen you would be okay, don't get stressed and stay out of the ultraviolet lights.  The thing is even when I do all of this a flare still happens and here I am with me.  I can tell you that you are not alone and I am here to listen.  Thanks for sharing.  Gentle, gentle Hugs.  Tish G. http://journals.aol.com/tish852tlc/tlc-promises/
• #5 Comment from tlgf1968 
  12/30/07 3:07 PM | Permalink

  feelin' for ya ... even in sunny weather where you're supposed to feel better the flares come on like gang busters. hope you feel better soon!